As with care of other chronic conditions, transition to adult services needs to be planned well ahead of turning 16. Focus and decision making should be more around the young person themselves.

Topics include:

• Understanding of own condition
• Risks and risk management
• Medication – risks of missing, side effects, how to not forget
• Peers – explaining condition or sharing diagnosis (common misunderstandings)
• Impact on independent living, career
• Impact on relationships
• Effect of alcohol/drugs
• Emotional well being, self image

Specific things for epilepsy are:

• Driving
• Contraception and pregnancy
• Seizure management plan
• Stigma

See https://www.youngepilepsy.org.uk/parents-and-carers/adolescence-and-beyond/transition-to-adult-healthcare and other patient/family support websites.